I decided to brave a dinner out with Preston. He's very diffcult to control at restaurant's. I always bring a stack of new toys or notebooks/pens/pencils/playdough but suffice it to say all of the funnest things in the world will not keep that boy seated. Normally, McD's is about as daring as I get alone. Mike and I will take him out to Moe's or Ruby Tuesday's but overall it is NOT an enjoyable outing for any of us. It's generally very stressful.
BUT, Saturday night, I decided to take him to the new Fritz' Diner in Shawnee. If you're not familiar, Fritz' delivers your food by miniature Train. Preston is in awe of trains and cars. So, every time he saw the train and heard the whistle, he would squeal with delight, yell "MOM. MOM", point and watch it make the delivery around the restaurant. He actually stayed at our booth, however, he never really stayed seated....but that was ok. It wasn't a horrible experience and seeing him light up, just brought tears to my eyes. He ate amazingly well, too.
Still working on age and "big" and "little" items. Neither of which are making any progress so to speak.
Monday, November 16, 2009
Thursday, November 12, 2009
Thursday November 12th
Preston and I visited the Lee Ann Brittain center today. What a beautiful facility. I spoke to Amy, the director for about an hour and a half. She had a lot of great suggestions for him. She gave me the name of a therapy group for children. I felt really confortable with her and she wasn't shoving her school down my throat. She seemed genuinely interested in his well being. She is going to visit with Shannon Lockwood (OT that works there and happens to be a friend of ours) and see if they can come up with some answers about helping him progress more. She complimented Preston to me a lot. She saw that he had some great skill sets. He DOES.
I then spoke to the SPED teacher at our school in his classroom. Juanita. She suggested we work on little and big. He doesn't understand those yet. I am concerned that he still doesn't know his age. He says he is "2" when asked though we we have repeatedly tried teaching him he is "3" since last December! He's now closer to FOUR than three! ACK....Where did the time go? Anyway. He has a long haul. He is fighting "work" with me and with the teachers some. He cries when they make him work too much. I think he needs to be pushed.
I feel a little lost. No one really directs us. I have to learn to be his advocate. I had a case worker with ITS but now I have ME and Mike and that is it! And we don't know much about all of this. I am starting to research and learn as much as I can.
Amy is going to call me back next week. Juanita is contacting all of his therapists and having him re-evaluated for OT services. He is clearly sensory seeking. Then we will review his IEP.
The ball is rolling.
I then spoke to the SPED teacher at our school in his classroom. Juanita. She suggested we work on little and big. He doesn't understand those yet. I am concerned that he still doesn't know his age. He says he is "2" when asked though we we have repeatedly tried teaching him he is "3" since last December! He's now closer to FOUR than three! ACK....Where did the time go? Anyway. He has a long haul. He is fighting "work" with me and with the teachers some. He cries when they make him work too much. I think he needs to be pushed.
I feel a little lost. No one really directs us. I have to learn to be his advocate. I had a case worker with ITS but now I have ME and Mike and that is it! And we don't know much about all of this. I am starting to research and learn as much as I can.
Amy is going to call me back next week. Juanita is contacting all of his therapists and having him re-evaluated for OT services. He is clearly sensory seeking. Then we will review his IEP.
The ball is rolling.
Saturday, November 7, 2009
November 2009-Update
Oh my. It's been too long. I am going to start posting here again regularly.
Preston is now 3 years and 8 months old. Hard to believe he is almost 4 years old.
He is making a lot of progress with words. He has lots and lots. He is also putting small sentences together. A lot of the time, we have to coach him to put the words together. We are asking him to give a little more when he asks/whines for things. He IS pointing now. He points to the sky and says "airplane"! He says "I want apple". Sadly, he is on to our tricks and the tricks of the speech path at school. He doesn't like to "work". He started school in March. Love his Sped teacher. He is in a school through our school district. There are 10 kids in the class room. 5 with special needs, and 5 that are model students. At our first Parent Teacher conference, we learned that the teachers LOVE our boy (and why wouldn't they? LOL) While he is progressing, he is not progressing at the speed that they would like to see. We have lots of work to do.
He is a fun little boy. He LOVES his big brother. Anything Cooper does, Preston wants to do-however, talking isn't one of those things! He seems to struggle with comprehension. He doesn't understand "If than.......this......" statements. Makes it difficult to bribe him!
At any rate, it looks to be a long road ahead but we're up for the challenge. I'm making this blog a priority so I can track his progress better. He is such a joy to all of us. He goes ninety to nothing all of the time. He is SO interested in things. SOOO busy and into things. He is starting to listen and understand some "reasoning". He understands he has to hold my hand when we cross the street instead of darting across the street (most of the time). We recently ruled out the genetic anomolies that the Child Psych asked us to do. The genetic testing were simple blood draws thankfully!
More next week!
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